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What will it be
When, like the lily or the rose,
That in my flowery garden grows
I shall be flawless, perfect, Lord to Thee?
Amy Carmichael, Rose from Brier
After I posted #22, I thought maybe I should include an update on my medical condition, not only for any interested readers but also for me to document my Clinic visit and process the information. After all, I am a Life Coach, and we all know journaling is a technique used to process information.
Cliff and I should have known better than to plan anything after our visit to the ALS clinic. It is too exhausting. Next time, we will schedule a trip out of town and leave immediately following our appointment. This will give us time to talk and process information.
When I wrote the last blog about our clinic visit, I didn’t include anything about the ALS progression. The facts are my legs are noticeably weaker, so we spent quite a bit of time with Terry, the Occupational Therapist, discussing how to transfer on and off the toilet when I can’t stand and what other options are available. I was introduced to a slide board, which will be a different discussion for another day. Also, there is some weakness in my right arm, and my breathing has gone from low normal to highly abnormal. Even though we receive plenty of support, nobody likes to deal with bad news. I think we both go into the appointments thinking we are the exception to the rule. We’re not.
As you can tell, not only did we have to deal with the long appointment, but the news was also not so great either. Of course, we know this is all part of the disease, but it doesn’t make it any easier to absorb.
It is Monday, three days after our clinic visit, I am still tired, probably because of a few restless nights. The good news is I am out on my deck enjoying my backyard and smelling the sweet jasmine fragrance.
–Susan
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