What a journey! Rarely during my life have I been ill, yet, much to my chagrin, after all this time, I am still adjusting to all the ‘ins […]

Almost every day, Cliff and I are on the move. We do this with intention, primarily because we want to avoid thinking about my condition. I mentioned in […]

“Tethered: The utmost length to which one can go in action; the utmost extent or limit of ability.”   Last night, while sitting in my power bike, watching […]

As the Emergency First Responders headed toward the front door from our bathroom, I yelled to Tricia from the back of the house, “Get their picture!” Cliff was […]

Each week, as I prepare to write this blog, I spend time reflecting on events that impact my life, either directly or indirectly related to my ALS, keeping […]

This past week, I was jazzed. I like being proactive and figuring things out. I am part of a Facebook group that is only open to ALS patients. […]

After being diagnosed with ALS in August 2011, our world was turned upside down. We were advised: you have a life expectancy of two to five years, get […]

“Grief is a part of what it means to be human in a broken world. And once you wrap your heart around that fact, your sorrows have a […]

“It is not down on any map; true places never are.” Herman Melville As they say in many 12-Step Programs, “Hi, my name is Susan and I have […]