As the Emergency First Responders headed toward the front door from our bathroom, I yelled to Tricia from the back of the house, “Get their picture!” Cliff was […]

Each week, as I prepare to write this blog, I spend time reflecting on events that impact my life, either directly or indirectly related to my ALS, keeping […]

This past week, I was jazzed. I like being proactive and figuring things out. I am part of a Facebook group that is only open to ALS patients. […]

After being diagnosed with ALS in August 2011, our world was turned upside down. We were advised: you have a life expectancy of two to five years, get […]

“Grief is a part of what it means to be human in a broken world. And once you wrap your heart around that fact, your sorrows have a […]

“It is not down on any map; true places never are.” Herman Melville As they say in many 12-Step Programs, “Hi, my name is Susan and I have […]