It’s a good reminder here that my mother rarely asked for help. She was highly independent, and even throughout her diagnosis, I was called to come to […]
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#51 My ALS Journey—Rule 15: Be a Crusader & Know Your Disease
Almost every post I add to this blog guts me. Of course, I miss my mother, but I am also overwhelmed with the sweet gifts her life continues […]
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#53 My ALS Journey—My Anniversary Date
“Lady, that’s where Jasper is. He’s in the green house over there!” I’m driving with my just six-year-old granddaughter, Selena, and I strain to turn my head to […]
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#50 My ALS Journey—Well Deserved Tantrum
I am very sorry indeed to hear that anxieties again assail you. (By the way, don’t ‘weep inwardly’ and get a sore throat. If you must weep, weep: […]
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#49 My ALS Journey—Yesterday vs. Today
This week, I came across a new website entitled Her ALS Story. The site “seeks to raise awareness that ALS impacts young women diagnosed before 35 and provide […]
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#48 My ALS Journey—The Rule Book: Rule 12
A Rule Book by Susan Catlett Rule #12 for ALS This Rule is a reminder: it is not all about me. This is a tough rule because my […]
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#47 My ALS Journey—The Rule Book: Rule 11
A Rule Book by Susan Catlett A huge thank you to all for your encouraging words, thoughts, and prayers; it really helps to know you are all out there. […]
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#46 My ALS Journey—The Rule Book: Rule 10
A Rule Book (cont.) Rule Book and Artwork by Susan Catlett Adding rules to my Rule Book is great fun: it allows me to think through my days, […]
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#45 My ALS Journey—The Rule Book: Rules 7, 8 and 9
A Rule Book (cont.) Book by Susan Catlett Having fun and looking for joy in each day is one of my personal rules. I started my Rule Book to […]
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#43 My ALS Journey—Need for a Rule Book
A Rule Book By Susan Catlett A Rule Book. That is what I need, something to tell me what to do and how to feel, because I don’t […]
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#42 My ALS Journey—Rude Betrayal
Rudely, my body continues to betray me. Rudely, my body betrays me and fatigues me before I am ready. Last night, we were at my daughter’s, having dinner […]
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#41 My ALS Journey—Being Stupid
“The attempt to develop a sense of humor and to see things in a humorous light is some kind of a trick learned while mastering the art of […]
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#40 My ALS Journey—Treasured Moments
“Our problems cannot always be fixed, but they can always be accepted as the very will of God for now, and that turns them into something beautiful.” Elisebeth […]
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#39 My ALS Journey—Consumed
“The world tries to silence our expression of feelings of hopelessness and despair. This “shushing” breeds shame and an overall feeling that seeking comfort is selfish. As a […]
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#38 My ALS Journey—The Path and the Box
This blog of mothers made me laugh out loud, especially her discussion of sitting in the designated handicapped seating area in the church. Mother did not like Boxes. […]
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#37 My ALS Journey—A Good Week
Before my mom was diagnosed with ALS, I would describe her to people by saying she “ran circles around my dad.” Which, actually is saying a lot because […]
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#36 My ALS Journey—Ten to Ten
I’ve been considering what it means to be a strong Christian woman. It’s a loaded question in the world of faith. What does that exactly look like? Susan […]
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#35 My ALS Journey—Faith Believing
Somedays, my faith waivers, and I don’t always (almost never, actually) understand exactly what that purpose is…other than hanging on for the ride. Susan Catlett Sometimes, accepting the […]
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#34 My ALS Journey—A Fun Night
I think my mom’s joy of buying new shoes for every journey is one of my great joys today. Recently, I completed my Ph.D. (this alone would have […]
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#33 My ALS Journey—Thank You ALS Association
My mom loved the microphone and the stage. She appreciated the opportunity to educate and encourage others en masse. In this blog, she shares her speech at the […]