As the Emergency First Responders headed toward the front door from our bathroom, I yelled to Tricia from the back of the house, “Get their picture!” Cliff was […]
ALS / Family / Grief / Jesus / Lament / Lou Gehrig's Disease / Outings / Susan's Steps
# 58 My ALS Journey–Catheters and Urine
Each week, as I prepare to write this blog, I spend time reflecting on events that impact my life, either directly or indirectly related to my ALS, keeping […]
ALS / Family / Grief / Jesus / Lament / Lou Gehrig's Disease / Outings / Susan's Steps
#57 My ALS Journey–Gimmicks and Gadgets
This past week, I was jazzed. I like being proactive and figuring things out. I am part of a Facebook group that is only open to ALS patients. […]
ALS / Family / Grief / Jesus / Lament / Lou Gehrig's Disease / Outings / Susan's Steps
#56 My ALS Journey–Walk and Roll With Me
After being diagnosed with ALS in August 2011, our world was turned upside down. We were advised: you have a life expectancy of two to five years, get […]
ALS / Family / Grief / Jesus / Lament / Lou Gehrig's Disease / Outings / Susan's Steps
#55 My ALS Journey—Some Really Good Things
“Grief is a part of what it means to be human in a broken world. And once you wrap your heart around that fact, your sorrows have a […]
ALS / Family / Grief / Jesus / Lament / Lou Gehrig's Disease / Outings / Susan's Steps
#54 My ALS Journey—The First Step
“It is not down on any map; true places never are.” Herman Melville As they say in many 12-Step Programs, “Hi, my name is Susan and I have […]
ALS / Family / Grief / Jesus / Lou Gehrig's Disease / Outings / Susan's Steps
#53 My ALS Journey—My Anniversary Date
“Lady, that’s where Jasper is. He’s in the green house over there!” I’m driving with my just six-year-old granddaughter, Selena, and I strain to turn my head to […]
ALS / Family / Grief / Jesus / Lou Gehrig's Disease / Outings / Susan's Steps
#52 My ALS Journey—The Electronic Dilemma
It’s a good reminder here that my mother rarely asked for help. She was highly independent, and even throughout her diagnosis, I was called to come to […]
ALS / Family / Grief / Jesus / Lou Gehrig's Disease / Outings / Susan's Steps
#51 My ALS Journey—Rule 15: Be a Crusader & Know Your Disease
Almost every post I add to this blog guts me. Of course, I miss my mother, but I am also overwhelmed with the sweet gifts her life continues […]
ALS / Family / Grief / Jesus / Lou Gehrig's Disease / Outings / Susan's Steps
#50 My ALS Journey—Well Deserved Tantrum
I am very sorry indeed to hear that anxieties again assail you. (By the way, don’t ‘weep inwardly’ and get a sore throat. If you must weep, weep: […]