Many scary days
Many fear-filled nights
Muscles twitching
Muscles cramping
Musing about what is next, when is the rest?
Some days are good,
Some not so great
Sometimes a nap
Sometimes a rest on my deck
Seldom complete
Difference in fingers working
Difference in swallowing
The degree of my imagination
The degree of my denial
Decision to trust
Being busy helps the days
Being determined to face facts
Being brave when my heart beats faster
Being aware when breathing is hard
Bothered by all these things
It is weird to be in the chair
It is difficult to be limited
It is disappointing not to be and do
It is good to look for the good
It is worth it to still be who God called me to be
Keep smiling
Keep believing
Keep being
Keep trusting
Keep living
With help, I am determined to face my new normal…
–Susan